Some of these are private groups, wherein posts are accessible only by members. That organization and others, as well as unaffiliated, independent groups, host forums, chats, and message boards specifically for those with narcolepsy. Some foundations, like the Narcolepsy Network, use social networks such as Facebook as one means of offering support. Online narcolepsy support resources come in many different forms. Narcolepsy Online Support Groups, Forums, and Social Networks Another option is the website Meetup, which hosts several in-person narcolepsy support groups in different geographic areas. The search tool on the Narcolepsy Network website allows you to find such support groups and others near you. Some hospitals and health care organizations offer support groups (online and/or in-person) for those with narcolepsy. They may focus on a specific demographic, such as teenagers or young adults with narcolepsy, or a specific topic, like managing symptoms and emotional wellness. These meetings are generally led by a health care professional or patient education specialist. In-person support groups offer structured meetings scheduled at the same time (or times) each week. Some people with narcolepsy find that they enjoy using more than one type of support resource or that they benefit from a combination of online and in-person support. The type of support group right for you will depend on your needs and preferences. Other support options, like group meetings, offer structure with scheduled, appointed times for in-person and virtual meetings. Some support options, like MyNarcolepsyTeam, are social networks that are “live” at any hour of any day. Narcolepsy support groups and resources come in different sizes, structures, and formats. Different Types of Narcolepsy Support Groups “Sometimes I feel like this, but with the support, I always get through whatever I need to get through,” a MyNarcolepsyTeam member added. “Just know that you’re not alone, you’ve got this, and this community has honestly been great for support.” “Find people who support you, and don’t try to force people who just won’t understand,” advised another member on the topic. Reach out when you need to,” another member added. Thankfully, we’re NOT alone in this! That’s why this website exists, where we can share our experiences and know that others here understand!” “It’s those who don’t understand what we go through who tend to mistreat us,” one MyNarcolepsyTeam member wrote.
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